Push Research to New Heights

Make a difference and help advance hATTR Amyloidosis research by donating blood from home.

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Contribute to a great cause

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We bring the research to you

Compensation

Receive a Visa card for your time

Help Advance hATTR Amyloidosis Research

More than 50,000 individuals worldwide are living with hATTR Amyloidosis. Better medicine and treatment options are needed for hATTR Amyloidosis in order to save thousands of people each year. The goal of our study is to detect and quantify misfolded forms of TTR that are found in blood plasma from patients with ATTR amyloidosis and correlate these levels with disease. This will be done by using a proprietary assay developed by Prothena. Our aim is to assess the misfolded forms of TTR in treated and untreated patients as well as asymptomatic patients. Sign up to learn more and participate today!

Tell us about yourself

Carefully read through our privacy policy and complete a health profile form by answering a few general health questions.

Review study details

A research coordinator will review your completed health profile form and contact you via phone and email with further instructions and study details.

Participate from home

Complete study requirements from home with a visit from one of our certified and friendly mobile health staff.

Sign Up

Frequently Asked Questions

Will I be compensated for my time?

As a thank you for your time, we will provide you with a $50 Visa gift card for each home visit you participate in. You will receive the gift card immediately after the at-home blood collection appointment is completed.

When can I withdraw from the study?

You can withdraw from the study or decline participation at any time without providing a reason.

How much blood will be collected?

During the study visit, up to 10 mL (approximately 1 tablespoon) of blood will be collected by venipuncture. Only one tube of blood will be taken during the blood draw. You may be asked to participate in additional blood collections.

Why should I donate blood for research?

The reasons are endless. By donating blood, you are part of a process that may help researchers detect diseases earlier, and develop new therapeutics, diagnostics, and treatments for hATTR Amyloidosis.

Do I need to have health insurance?

No. You do not need to have health insurance in order to qualify for the study.

Who can donate blood for the research study?

Are you willing to donate blood from the comfort of your own home? Are you currently diagnosed with hATTR Amyloidosis and over the ages of 18? If you answered yes to these questions, then you could be an excellent candidate to donate for the study.

Have more questions? Feel free to contact us at (855) 383-1931

Terms of Use

 

Last Updated: January 2019

 

PLEASE READ THE FOLLOWING TERMS OF USE BEFORE USING the Sanguine Biosciences website or mobile application. Sanguine BioSciences (“Sanguine” “we,” or “us”) has developed this website and mobile app (collectively our “Site”) to facilitate research projects and to help connect patients and researchers seamlessly and conveniently for research studies to advance medical research (our “Services”). The Terms of Use are an agreement between you and Sanguine.  All users of the Site are subject to the following terms and conditions under applicable law. If you do not agree to these terms and conditions, please do not use the Site.

The following Terms of Use govern use of the Site and the Privacy Policy describes how information collected on the Site will be used. These policies are subject to change. Please check this page for updates.  We will deem your continued use of our Site to constitute your acceptance of and agreement to such modification.

 

Eligibility and Authority

The Site are available only to users who can form legally binding contracts under applicable law.  By using the Site you represent and warrant that you are (i) at least eighteen (18) years of age and/or (ii) otherwise recognized as being able to form legally binding contracts under applicable law.

 

Medical Disclaimer

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Sanguine does not practice medicine or any other licensed profession, and does not interfere with the practice of medicine or any other licensed profession by treating providers, each of whom is responsible for his or her services and compliance with requirements applicable to his or her profession and license. Any information or advice you receive from a health care provider comes from that professional, and not from Sanguine.  Sanguine will not be liable for any professional advice you obtain from a health care provider when using the Site or any research study in which you might participate.  Sanguine does not make any representations or warranties about the training or skill of any health care provider who utilizes the Site or who arranges for, develops, or implements a research study.

 

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You are prohibited from violating or attempting to violate the security of the Site, including, without limitation to: (1) accessing data not intended for you or logging onto a server or an account you are not authorized to access; (2) attempting to probe, scan or test the vulnerability of a system or network or to breach security or authentication measures without proper authorization; or (3) accessing or using the Site or any portion thereof without authorization, in violation of these Terms of Use or in violation of applicable law. Violations of system or network security may result in civil or criminal liability. Sanguine will investigate occurrences that may involve such violations and may involve, and cooperate with, law enforcement authorities in prosecuting users who are involved in such violations. You agree not to use any device, software or routine to interfere or attempt to interfere with the proper working of the Site or any activity being conducted through the Site.

 

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The Privacy Policy is incorporated and made part of this Agreement. To view the most current version of the Privacy Policy, please visit the Privacy Policy at https://trials.sanguinebio.com/privacy-policy/

 

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Sanguine and its licensors own all proprietary rights to the service and technology related thereto, and grants you a personal, revocable, non-assignable, and non-exclusive license to use the Site in accordance with these Terms of Use. Except as expressly set forth herein, you have no right, title or license to any of intellectual property of Sanguine or its licensors.

Permission is granted to electronically copy and print hard copy portions of Site to utilize for your personal use, including for consultation with your health care providers.  Any other use, including but not limited to the reproduction, distribution, display, or transmission of the content of the Site is strictly prohibited, unless authorized by Sanguine. You further agree not to change or delete any proprietary notices from materials associated with the Site.

All trademarks, service marks, and trade names of Sanguine, affiliates and vendors used in the Site are owned and copyrighted by Sanguine or its affiliates and vendors are protected by U.S. and international copyright laws.

Any use of the Site or its content that is not expressly permitted by these Terms of Use is a breach of this Agreement and may violate copyright, trademark, and other laws. All rights not expressly granted to you in this Agreement are reserved by us and our licensors.

 

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The Site and the materials and products in the Site are provided "as is" and without warranty of any kind, whether express or implied. To the fullest extent permissible pursuant to applicable law, Sanguine disclaims all warranties, express or implied, including, but not limited to, implied warranties of merchantability and fitness for a particular purpose and non-infringement. Sanguine does not represent or warrant that the functions contained in the Site will be uninterrupted or error-free, that any defects will be corrected, or that the Site or the server that makes the Site available are free of viruses or other harmful components. Sanguine does not make any warrantees or representations regarding the use of the materials in the Site in terms of their correctness, accuracy, adequacy, usefulness, timeliness, reliability or otherwise. Some states do not permit limitations or exclusions on warranties, so the above limitations apply unless prohibited by law.

 

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IN NO EVENT WILL SANGUINE AND ITS AFFILIATES OR THEIR LICENSORS, SERVICE PROVIDERS, EMPLOYEES, AGENTS, OFFICERS OR DIRECTORS BE LIABLE FOR DAMAGES OF ANY KIND, UNDER ANY LEGAL THEORY, ARISING OUT OF OR IN CONNECTION WITH YOUR USE, OR INABILITY TO USE, THE SITE, ANY CONTENT ON THE SITE OR ANY SERVICES OR ITEMS OBTAINED THROUGH THE SITE, INCLUDING ANY DIRECT, INDIRECT, SPECIAL, INCIDENTAL, CONSEQUENTIAL OR PUNITIVE DAMAGES, INCLUDING BUT NOT LIMITED TO, PERSONAL INJURY, PAIN AND SUFFERING, EMOTIONAL DISTRESS, LOSS OF REVENUE, LOSS OF PROFITS, LOSS OF BUSINESS OR ANTICIPATED SAVINGS, LOSS OF USE, LOSS OF GOODWILL, LOSS OF DATA, AND WHETHER CAUSED BY TORT (INCLUDING NEGLIGENCE), BREACH OF CONTRACT OR OTHERWISE, EVEN IF FORESEEABLE.

THE FOREGOING DOES NOT AFFECT ANY LIABILITY WHICH CANNOT BE EXCLUDED OR LIMITED UNDER APPLICABLE LAW.

 

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You absolve and release Sanguine from any claim of harm resulting from any cause(s) over which Sanguine does not have control, including, but not limited to, failure of electronic or mechanical equipment or communication lines, telephone or other interconnect problems, computer viruses or other damaging code or data, unauthorized access, theft, operator errors, severe weather, earthquakes, natural disasters, strikes or other labor problems, wars, or governmental restrictions.

 

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These terms and conditions are applicable to you upon your accessing of the Site. These terms and conditions, or any part of them, may be terminated by Sanguine without notice at any time, for any reason. The provisions relating to Medical Disclaimer, Intellectual Property, Limitation of Liability, and Indemnification shall survive any termination.

 

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Harassment in any manner or form on the Site is strictly forbidden. Impersonation of others, including a Sanguine or other licensed employee, host, or representative, as well as other members or visitors on the Site is prohibited. You may not upload to, distribute, or otherwise publish through the Site any content which is libelous, defamatory, obscene, threatening, invasive of privacy or publicity rights, abusive, illegal, or otherwise objectionable which may constitute or encourage a criminal offense, violate the rights of any party or which may otherwise give rise to liability or violate any law. You may not post or upload anything that contains a software virus or other computer code, files or programs designed to interrupt destroy or limit the functionality of any computer software or hardware or telecommunications equipment, including any denial of service attack.  You also may not exceed your authorized access, may not use data mining, robots, screen scraping, or similar data gathering and extraction tools, and may not collect or store personal data about anyone else.

 

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You agree to indemnify, defend, and hold harmless Sanguine, its officers, directors, employees, agents, licensors and suppliers (collectively the "Service Providers") and its program partners from and against all losses, expenses, damages and costs, including reasonable attorneys' fees, resulting from any violation of these terms and conditions or any activity related to your account (including negligent or wrongful conduct) by you or any other person accessing the Site using your Internet account.

 

Enforceability

Except as set forth otherwise herein, Sanguine controls and operates the Site from the United States of America and makes no representation that the Site made available to you is appropriate or available for use outside of the United States of America. You are responsible for compliance with applicable local laws including, without limitation, all export and import laws. Some of the Content may be subject to export controls imposed by the United States and may not be downloaded or otherwise exported or re-exported: (i) into (or to a national or resident of) any country to which the U.S. has placed an embargo; (ii) to anyone in the US Treasury Department’s Specially Designated national list, or (iii) to anyone on the US Commerce Department’s Table of Denial Orders. If you download or use the Content, you represent and warrant that you are not located in, or under the control of, or a national or resident of any such country or on any such list.

You agree that these Terms of Use, the Privacy Statement, and any legal action or proceeding relating to the Site shall be governed by the state of Delaware without reference to its choice of law rules.

 

Contact Information

All notices to you relating to this Agreement shall be posted on the Site. You may contact us any time regarding these Terms of Use by email to study@sanguinebio.com.

 

Privacy Policy

 

Last Updated: January 2019

 

Sanguine BioSciences (“Sanguine” “we,” or “us”) has developed this website and mobile app (collectively our “Site”) to facilitate research projects and to help connect patients and researchers seamlessly and conveniently for research studies to advance medical research (our “Services”). We take your privacy very seriously. This privacy policy describes our collection of personal data when you use our Site and our Services. This policy describes our use and disclosure of such personal data, and the steps we take to protect such personal data. “Personal data” means any information relating to an identified or identifiable natural person directly or indirectly, including medical and health-related information. By using our Site and our Services you agree to and consent to the collection and use of your information as described below.

If you do not want us to use your information or your data as stated in this Privacy Policy, please do not use our Site or our Services.

Our Site and our Services are available only to users who can form legally binding contracts under applicable law. By using our Site and our Services you represent and warrant that you are (i) at least eighteen (18) years of age and/or (ii) otherwise recognized as being able to form legally binding contracts under applicable law. If you do not meet these criteria, please do not use our Site or our Services.

 

Information We Collect

When you register for our Services, we ask that you create an account with us.  During that process, we will collect information about you such as your name, age, gender, health information, and contact information (such as your phone number, street address, and email address). Once you have registered with us, and signed our authorization form, we will continue to collect additional information about you, as described in that form, to help researchers evaluate potential research projects and to help us better identify research studies for which you might be eligible and interested.

In addition to the Personal data we collect when you register and use our Services, we automatically collect and store other information about you such as:

 

How We Use the Information

We may use your contact information, including your email address, to communicate with you for administrative purposes regarding your use of the Site and the Services. We may use your contact information to request additional information from you. We may also use your contact information to communicate with you about a potential research study, to verify information you have provided to us, or to schedule a time to collect a specimen sample from you (if you have consented to that collection). We may use your information for any other purpose that we disclose to you at the time the information is collected, or to which you consent.  We may also use your contact information to communicate with you about topics that may be of interest to you, for example, we may send you educational material related to your health condition, or may provide you with information related to general health topics.

Your participation in any research study is voluntary. You can change your mind and decide not to be in a research study at any time. There will be no penalty to you, and you won’t lose any benefits to which you are already entitled.  As a part of any study you decide to join, you will receive a copy of an informed consent form. If you decide to stop participating in a study, please contact the study staff at the number listed in the informed consent form. If you would like your name to be withdrawn from our contact list for future studies, please contact the study staff at (855) 836-4759. If possible, please make your request in writing and send an email to study@sanguinebio.com.

We use the information that we collect through the Site and our Services to operate, maintain, enhance, and provide all features of our Site and Services. We also use the information to provide services to respond to comments and questions for user support.

We may de-identify and aggregate your information and use and share that information as described below.

We use standard log files and other automatically-collected usage data that is essential for the Site to function effectively, including to: (i) monitor and analyze the Site; and (ii) monitor aggregate Site usage metrics.

 

How We Share the Information

We may work with business partners in making our Site and Services available to you. Our policy is to require companies with whom we do business to support the same privacy policies we do. These parties are not allowed to use Personal data except for the purpose of providing their services to us.

We may share your information with a research site, if you have accepted this Privacy Policy and the Terms of Use, so that you can be considered by that site for a clinical research study.

To the extent permitted by applicable law, we may disclose your information if required to do so by law to comply with state and federal or other relevant laws, in response to a court order, judicial or other government subpoena or warrant, or to otherwise cooperate with law enforcement or other governmental agencies.

We also reserve the right to disclose your information that we believe, in good faith, is appropriate or necessary to (i) take precautions against liability, (ii) protect ourselves or others from fraudulent, abusive, or unlawful uses or activity, (iii) investigate and defend ourselves against any third-party claims or allegations, (iv) protect the security or integrity of our Site and Services and any facilities or equipment used to make our Site and Services available, or (v) protect our property or other legal rights (including, but not limited to, enforcement of our agreements), or the rights, property, or safety of others.

Information may be disclosed and otherwise transferred to an acquirer, successor, or assignee as part of any merger, acquisition, debt financing, sale of assets, or similar transaction, or in the event of an insolvency, bankruptcy, or receivership in which information is transferred to one or more third parties as one of our business assets, to the extent and in the way as prescribed by applicable law.

 

De-identified and Aggregate Information

We may use your information to create de-identified data. De-identified data is information that has all of the identifying information removed from it.

Aggregate information is information that describes the habits, usage patterns and/or demographics of users as a group but does not reveal the identity of particular users. We may use aggregate information within Sanguine to understand the needs of individuals using our Site and Services

 

Do Not Track

For web browser use, you may set your browser to refuse these data collection methods, but we may not recognize or respond to “do not track” technologies employed by your browser. We do not track App users over time and across third party websites or online services to provide targeted advertising, and we do not specifically respond to Do Not Track (“DNT”) signals.

 

Storage of Information Collected

Information may be stored or processed in locations other than the jurisdiction in which you live or work. In such cases we will work to ensure that any vendor we use in that location has the appropriate protections in place. By using our Site and Services, you agree to the collection, storage, and processing of your information to any country in which we may conduct our business operations.

 

Data Security

Sanguine uses appropriate physical, managerial, and technical safeguards that are designed to protect the confidentiality, integrity and security of personal data that we collect and maintain against accidental or unlawful loss, theft and misuse and unauthorized access, disclosure, alteration destruction, or any other type of unlawful processing. Unfortunately, no web site, server or database is completely secure. Sanguine cannot guarantee that your Personal data will not be disclosed, misused or lost by accident or by the unauthorized acts of others.

 

Analytic Tools

We use tools, such as those provided by Google Analytics and FaceBook to help analyze how users use the Site. These analytic tools collect information such as how often users visit the Site, what pages they visit, and what other sites they used prior to coming to the Site. We use the information we get to improve our Site and Services.

 

Third Party Links

If you are directed to a third party’s website through a link on our Site that third party’s website may collect information about you when you view or click on its website. Sanguine has no control over this collection of information. You should contact the content provider directly if you have any questions about its use of the information collected. The website and services may have their own privacy policies, or no policy at all. We encourage you to review the privacy policies of any third party websites or services before providing any of them with your personal information.

 

California Shine the Light Law

If you are a California resident, California Civil Code Section 1798.83, known as the “Shine the Light” law, permits individuals who are California residents to request and obtain from us a list of what Personal Data (if any) we disclosed to third parties for direct marketing purposes in the preceding calendar year and the names and addresses of those third parties. We will never disclose your personal information to third parties for direct marketing purposes without your authorization. However, if you would like to make a request for information under the Shine The Light law, please contact us by email at study@sanguinebio.com.  Requests may be made only once a year and are free of charge.

 

Changes to Our Privacy Policy

Sanguine reserves the right to change this Privacy Statement, and when updated, the effective date of the new version will be at the top of this statement.  By continuing to use our Site and our Services you agree to and consent to the collection and use of your information as described above.

 

Governing Law

This Privacy Policy is governed by and incorporated by reference into the Terms of Service, available at https://trials.sanguinebio.com/terms-of-use/and should be interpreted in a manner consistent with that terms of use. Where an inconsistency exists between this Privacy Policy and the Terms of Use, this Privacy Policy shall control the relationship between the parties. If you believe we have violated this Privacy Policy, please contact us at study@sanguinebio.com.

 

Contact

If you have any questions, comments or requests regarding this Privacy Policy or our processing of your information, please contact: study@sanguinebio.com.